PROFESSIONAL AND NON-PROFIT ORGANIZATIONS
ACHE (The AHS Committee for Headache Education)
ACHE, founded in 1990 by the American Headache Society, is a patient-physician partnership devoted to enhancing public understanding of headaches. The website’s “Information for Patients” page has many detailed Articles and Podcasts, and the “Tools for Patients” section includes samples of headache diary forms, MIDAS tests and a Trigger Avoidance Sheet that you might find useful.
International Headache Society
The IHS’s non-member site has a limited amount of material of use to patients, but The Learning Center section has a few interesting sample slide decks.
National Headache Foundation
The NHF is a voluntary support organization that offers webinars and podcasts for headache sufferers, a physician finder, and publishes Head Wise, an online magazine.
American Academy of Neurology
AAN is the parent professional society for neurologists specializing in headache disorders. This link is to the Patients & Caregivers site. The Disorders section has pages on Headache and Migraine where you can read articles from Neurology Now magazine, AAN patient guidelines and recent press releases.
World Headache Alliance
The Alliance works with the WHO, the International Headache Society and other organizations to address the needs of headache sufferers everywhere in the world and improve access to treatment. It is also the lay partner organization in Lifting the Burden (see below).
Lifting the Burden
A global campaign against headache, Lifting the Burden seeks to raise awareness among governments and other resource providers of the need to support efforts to study headache and alleviate its burden on societies everywhere. Epidemiological studies are expected to show that headache disorders collectively are in the top 10 causes of disability in the world.
NINDS (National Institute of Neurological Disorders and Stroke)
This website provides information about NIH patient recruitment for migraine clinical trials as well as a listing of government agencies that provide services that may be of use to headache patients and their families.
Migraine Aura Foundation
An excellent website that presents effective video, artistic and textual explorations of the phenomenon of aura in migraine headaches. Recommended.
Migraine Research Foundation
The website’s About Migraine section is nicely designed with scrollable text on the various topics and a contiguous set of links to the headings for these topics. Has a good Migraine Fact Sheet.
MAGNUM aims to increase awareness of migraine as a true neurological disease and to change federal regulations to include Intractable Migraine on the Code of Federal Regulations Listing of Impairments. The site has useful articles about coping with migraines at work and at home. MAGNUM also runs Migraine Blog, one of the most comprehensive and regularly updated collections of posts and articles about migraine.
American Migraine Foundation
A non-profit supported by the AHS and public donors and dedicated to innovative research into headache management. It provides basic information about migraine and links to various sections of the AHS.
Alliance for Headache Disorders Advocacy
The Alliance is an umbrella group of non-profit organizations whose purpose is to advocate for increased funding of research into headache disorders.
Headache Cooperative of New England
HCNE is an organization of medical, dental and allied health professionals interested in headache medicine. The Information for Patients section has a set of nicely designed, easy-to-read slide presentations on various aspects of headache diagnosis and treatment.
Headache Cooperative of the Pacific
HCOP was created to promote communication among providers of headache care in the western states. Unfortunately the website does not currently provide much information for non-members.
European Headache Federation
A UK-based organization whose mission is to improve awareness of headache disorders among governments, health care providers and consumers. It has a focus on training young doctors in European countries in headache treatment.
Headache Network Canada
A concise Canadian website that includes a patient blog
Miles for Migraine
Fundraising via fitness!